Understanding, Describing Cancer Pain - ReadNews
When facing a serious illness like mesothelioma, one of the things people fear most is uncontrolled pain.
Today, health care providers have a much better understanding of pain and are well-equipped with tools to help their patients manage their pain. When patients begin tuning in to their discomfort, it helps them communicate specifics � location and intensity of their aches - to their health care team. It's a valuable tool their physicians can use to more effectively manage that pain.
There are several reasons why someone with mesothelioma may experience pain. Surgical interventions can lead to post-operative pain. Chemotherapies can lead to bone pain and aches and tingling in hands and feet, known as peripheral neuropathy.
Radiation treatments also can lead to painful skin irritation and burning. Fluid buildup in the abdomen or chest creates tightness, pressure and shortness of breath.
Why Do We Feel Pain?
The perception of pain in our bodies is called nociception.
We feel pain when tissue damage is occurring or has occurred. Our brains interpret pain signals as something that is wrong in our bodies. That pain experience is influenced by many physical and psychological factors. It is completely subjective in nature.
Mesothelioma patients may feel pain as a direct result of the cancer itself or as a side effect of treatment. Understanding the location of their cancer and how different treatments affect their bodies can help them better express that pain to their physicians.
How Does Pain Affect Mesothelioma Patients?
The experience of pain can limit one's activities, such as work, hobbies and chores. It is human nature to avoid movements and activities that cause pain. If it hurts to swallow, we limit our eating and drinking. If we feel pain when we walk, due to bone or muscle pain, we tend to remain still. When an area is painful, our muscles around that area contract and stiffen, causing even more pain.
Uncontrolled pain can affect our sleep patterns, too. When our brain receives pain signals, it is unable to switch into "sleep" mode and go through all the necessary cycles of deep rest.
Studies have linked anxiety and depression to chronic pain. When the brain is constantly receiving pain signals, the levels of serotonin in our brains are altered, contributing to clinical depression. Worrying about when and if the pain will return or worsen, is stressful. Many chronic pain patients have a coexisting anxiety disorder.
Communicating Your Pain
The first step to managing pain is to understand it, and then communicating that experience to your health care team. Pain assessment scales have been very helpful in helping patients and their health care teams comprehend and manage pain. Health care teams regularly ask most mesothelioma patients to rate their pain on a scale of zero (none) to 10 (intense). Physicians and nurses record these ratings in their patients' medical records.
There are some helpful tips to effectively communicate your pain to your physicians. Most patients feeling discomfort say, "Doc, I�m in pain.� That's simply too general. Your health care provider needs specific information in order to best manage your pain:
Location: Show your physician exactly where the pain is located and where the pain travels.
When/How It Began: Describe if onset was slow or sudden and if any event precipitated the episode.
Characteristics: Explain frequency, duration and intensity of pain by using words like mild, intense or severe. You can be more specific: Stabbing, throbbing and dull. Communicating pain is not easy, which is why pain assessment scales were developed.
What Improves/Worsens Pain: Describe if situations or events like weather changes, stress or lack of sleep reduce or increase your pain.
Response to Activities: Tell your doctor what activities increase your pain and those that relieve it. Some people find that prolonged sitting or standing can affect pain.
Log Your Pain
Keeping track of your pain on a daily basis is helpful. Your memory might not be as accurate when you are in your doctor�s office trying to remember specifics of everything you felt.
There are a variety of logs specially tailored for tracking pain that you can find on the Web, print out and record your pain. I recommend the online pain log by PartnersAgainstPain.com to track your aches daily.
Maximizing quality of life is very important while battling mesothelioma.
Poorly managed pain negatively impacts quality of life in all cancer patients. Remember: While you might not be control of your pain, you are certainly in control of understanding and communicating your discomfort to your health care team.
That amount of personal control will help you cope with mesothelioma pains and accomplish the best possible quality of life.
Credit goes to real Author :Dana Nolan
Dana Nolan, MS, LMHC, is a licensed mental health counselor who leads The Mesothelioma Center�s monthly support group. She specializes in working with individuals affected by cancer. Dana practices in Altamonte Springs, Fla.
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